Monday, May 19, 2008

last pic

Pics from DW in DEC

The parades were his favorite...



is home

Sam is still doing well.  The pain meds manage his pain well and we have lowered the dose so he isn't quite so loopy--His creativity has not suffered; as I type, he is reclined on the couch, in his new Pharaoh hat, without a shirt because, "everyone knows Pharaohs DO NOT wear t-shirts, mama!!"   He is hard at work creating me a "girl Pharaoh hat"...  It is so good to have this fun kid home again..   thank you K

Saturday, May 17, 2008

11- pm

We got home from the hospital a couple of hours ago.  Sam is sleeping on the couch- The pain meds work very well but make him a bit loopey---his last words before he fell asleep were, "hunk-a-hunka burning love".  (See Chip's post last night.)  On the topic of meds--we had a scare --as we drove into our tiny village of  Leavenworth tonight we drove to our regular pharmacy ...CLOSED!!!  Every other pharmacy we called was also closed.  After a little panic attack on my part (we have no pain meds for Sam)  our friend Joy saved the day (THANK YOU!!!)   by locating a 24 our pharmacy in Kansas City----so that is where Chip is at this late hour.  I think sam is on the road to recovery--THANK YOU All!!

3:30 PM

Another good day-Up in the chair a few times-not without pain but not the intensity that it was initially--We may even go home tonight.  We are all tired and ready to be home.  Thank you again and AGAIN for your prayers ad support!!  WE Love you!! K

Friday, May 16, 2008

9:32 PM Very Good Day

We had a hunka-hunka, burnin' good day!  Chip here.  Sam and I just finished watching Lilo and Stitch.  The closing song to the movie is "Burning Love," by my fellow Mississippian, Elvis.  Yep, Kristin is trusting me to stay with Sambo tonight at the hospital - "The inmates are running the asylum!!!"  

Sam had a very good day.  They cut him loose from all his IV's, monitoring stuff and the catheter.  He felt better as the day went on.  With Phys. Therapy's help, we transferred him out of the bed and into his wheelchair - twice.  The first time the pain was acute when we moved him from the chair back to the bed.  The second time we put him in the chair was much less painful, even when we moved him back to the bed.  Those are huge steps forward.  

The doc showed us X-Rays of Sam's hips.  He's going to set off metal detectors, but the outward product, his new hips, look great.  Sam's morale is high.  Kristin will finally get some sleep.  And as I look at this suddenly energized kid, I'm missing the sleepy effect of the morphine.  I think I got him too worked up with my dancin' and singin' along with the King.  

"I'm just a hunka-hunka, burnin' love, I'm just a hunka-hunka, burnin' love..."  

7:35 am

Quick update- good night- less pain when we move him-some sleep for both of us-wonderful nursing staff-no word yet re casts-more later

Thursday, May 15, 2008

6:45 pm

Today was better than yesterday.  They changed him to a morphine pump that he controls. This has helped, but he still has intense pain anytime we move him.  He has not yet gotten out of bed so we just shift his weight in the bed. Even this little movement is, as he put it "so very, very painful."  (That will break a mama's heart.)  They did a blood transfusion this afternoon and he looks better --good color, alert, watching tv,...  The DR said that he will revisit the spica cast idea tomorrow -as Sam might need the extra stability after all.   Thank you again for your prayers and support...K

8 am

Rough night with vomiting and pain but Sam is awake and watching Disney Playhouse right now.  He has a low grade temp 100.5 at last read but the DR says that is not unusual.   We so appreciate your prayers and kind words of encouragement...It doesn't "take a village" ..It takes the body of Christ!!! K 

Wednesday, May 14, 2008

no casts

PS-The DR did NOT have to cast him --NO hip spica casts--That would have been miserable for all...

8:30 pm

It's about 8:30pm here--(regardless of what time this post may indicate below)- Sam is resting comfortably now.  The nausea came but seems to have passed for now.  He only seems to hurt when we move him, which of course we must do every hour.  He is a champ. Just a little while ago I took his picture with Lilly - his stuffed dog- -our little camera ham cheezed it up just long enough for me to snap the pic.  Pray for a good night rest for the little guy and for his back --to NOT get pressure sores.  blessings--   K

We are in the room

We are in a room and Sam is sleeping.  We have to wake him every 45 minutes to check his back and reposition him.  When we move him it is painful but no nausea this time, which is a huge blessing.  There is a single day bed and a recliner in here so theoretically we could both spend the night.  However , Chip will probably go home tonight to check on Lilly and catch a few zzz there before returning tomorrow morning.  Without traffic, the hospital is about an hour from our house.  Thanks for your prayers...K

Out of surgery

Sam is out of surgery.  The Dr said that he does have some pain, which is a bad and good thing--bad for obvious reasons but good b-c he will be less likely to move in a way that damages his hips. We will go see him in a few minutes --now according to the DR one big goal/concern/prayer request is to make sure he doesn't get breakdown on his back.  Thanks for your prayers--K

random pics..


Some pics from the last few weeks.

Pharoah Sam is my favorite.  He came home one day and announced that he "needed a Pharoah hat"...

So far so good...

The nurse called a few minutes ago and said that everything was going well and that they started on his right hip about 45 minutes ago.  Thanks for your prayers--K

hip surgery

They just took Sam to surgery.  For those of you who don't know,  the purpose of this surgery is to improve mobility in Sam's hips.    Sam was a trooper- no tears, cracking the staff up.   He took his little stuffed dog, Lilly with him, because he didn't "want HER to be afraid".

Recently we were talking about fear.  I asked him if he had ever prayed to God when he was afraid in Lithuania.  He replied, "OH NO (with Sam it is never just yes or just no) ..OH NO, mama, I did not know God back then!"  

We have our computer , so we will update this blog through out the day.  They expect the surgery to last three to five hours.  Recovery will be 3-7 days in the hospital.  He may or may not have hip spika casts....

Please pray---K